Meet Remmie!

If you know Remmie, you’ve likely experienced the light of the Lord through her. Though she is nine years old and completely nonverbal, she has a way of speaking straight to people’s hearts without ever saying a word. Her joy is contagious, her smile is unforgettable, and her love for worship is something you have to witness to understand.

Remmie has a rare genetic condition called ALG-13 Congenital Disorder of Glycosylation (CDG). Simply put, her body is missing part of the instructions it needs to grow and communicate the way most children’s do. She has significant cognitive and motor developmental challenges, nervous system disregulation, and lives with epilepsy, but none of those things feel bigger than the incredible story God is writing over her life.

She is deeply loved, fiercely protected, and surrounded by sisters, cousins, and a family who all live together on our ranch compound in the hill country. She has taught us that life didn’t end with a difficult diagnosis. It was simply the beginning to something more beautiful than we ever imagined. Through the hardest seasons, the Lord replaced fear with hope, suffering with beauty, loneliness with community, and heartbreak with worship.

More than three years ago, Root for Remmie was born. What started as one family’s story has grown into an army of people choosing to walk alongside us. Today, Remmie has an incredible team of doctors helping her reach her fullest potential and navigate the bumps in the road along the way. Because Remmie has such a rare disorder, with fewer than 100 known cases worldwide, many of the treatments and tools making the biggest difference in her life aren’t covered by insurance. That’s where the Lord brought her an army to walk alongside her.

Through the kindness of this community, Remmie is able to receive therapies, treatments, respite care, adaptive equipment, and other resources that help her reach her fullest potential. More than anything, we ask that you pray for her, cheer her on, and believe with us that God is moving in her life and there is purpose to every part of her story.

Remmie’s story has always been about so much more than a diagnosis. It is the story of a little girl whose heart overflows with worship, whose life points people to Jesus, and whose greatest miracle may already be the way God is using her to change the hearts of everyone she meets.